Using Life Stories to Connect Veterans and Providers
Program Feedback
The original interviewer/writer team members (2.5 full-time employee equivalent for 6 months) generated 182 stories. The corresponding My Story notes in the CPRS were cosigned to an average of 3.3 providers. The program received both formal (solicited) feedback and informal (unsolicited) feedback from veterans and providers.
After gathering the first 80 stories, the team solicited participant satisfaction data from interviewed veterans, using a 5-point Likert-type scale. Veteran reaction was positive (Figure 1). The team polled VA providers with an online anonymous survey, using the same Likert-type scale to see whether the story and PHI were useful to providers in their clinical practice. The results suggested they were (Figure 2).
Perhaps the most enlightening and touching feedback were the following unsolicited e-mails and comments:
- I have so appreciated these stories, especially because they immediately become a source of connection with the veterans who come in (some for the first time) to see me about their heart failure. In the midst of a heavy “clinical” topic, knowing their stories has helped us form a stronger patient-provider relationship. It has provided moments of levity and a clear way to tell the patient that I am connecting with them and they are important. —VA employee
- I’m a veteran, and I love reading the real stories of veterans, told in their own words. For us, it’s always wonderful to feel like someone is listening. It’s good to feel like someone wants to hear what you’ve traveled through to get where you are. For those of us who put our lives, our health, our relationships, and our honor on the line for so many others, it’s great when someone will just take the time to listen and understand. It most definitely is very healing. —VA employee
- This is a great way to improve provider understanding and decrease bias and eliminate first impression issues, as people are generally ill and cranky when seeking medical care. —Veteran
- The My Story note was wonderful. I truly feel it has helped me to understand my patients better and to know where they are coming from. This is invaluable to the VA where experiences shape our patients in such a profound way. —VA employee
Recent developments at the WSMMVH suggest that veteran stories are becoming an accepted component of clinical care. The heart/lung transplant team requested that the My Story note be part of the transplant workup process for all new patients. The team also found that new HCPs who were assigned to a veteran regularly cosign that veteran’s My Story note to other providers on the care team. In addition, My Story referrals come from all types of HCPs and staff, both within the hospital and at primary care clinics.
Recent Developments
Two WSMMVH employees suggested using volunteers to gather stories and became the first volunteers: One was a housekeeper who had served in the U.S. Army during the Gulf War, and the other was a registered nurse; both had writing experience.
In 2014, staff trained 12 volunteers from the local community who have been trained to interview and write stories. The volunteers have varied professional backgrounds. All have a background and interest in writing or experience working in a health care setting; 2 are veterans. These volunteers are adding to the team at no additional cost. In development is a standardized training program and a method to look at story collection and writing fidelity, which will allow for further expansion of this program.
My Life, My Story continues to expand significantly. A total of 610 veterans have been interviewed, and 348 of these interviews were conducted by volunteers. The project now has 18 active volunteers with 4 more on a waiting list. A pilot has been launched at a WSMMVH outpatient clinic, which interviews VA primary care providers about their life stories and shares them with their veteran patients. There is now collaboration with the University of Wisconsin School of Medicine and Public Health in Madison to offer a 2-week My Story elective to fourth-year medical students in spring 2016. In March 2015, My Life, My Story expanded to 6 pilot facilities across the VA: Asheville, North Carolina; Bronx, New York; Iowa City, Iowa; Reno, Nevada; Topeka, Kansas; and White River Junction, Vermont.
Future Projects
- The team is currently analyzing the themes appearing in veteran stories, using grounded theory methodology
- The process for outpatients is being revised, using phone calls and telehealth modalities to collect stories
- The team members are examining relationships between themes in stories and health/wellness goals identified on the PHI
- Eventually, the team will study how this process might improve the veteran/provider relationship on measures of satisfaction with care, quality of care, and health outcomes. The authors will also assess the effects of this process on provider satisfaction and burnout