News from NORD

NORD to Moderate Panel at NIH Rare Disease Day Event


NORD Board Chair Marshall Summar, MD, of Children’s National Health System, will moderate a panel on the importance of collaborating with patient organizations in rare disease research at the annual National Institutes of Health (NIH) Rare Disease Day event on March 1, 2018. The event is open to the public and will be webcast. Other speakers will include NIH Director Francis Collins, MD, PhD; representatives of the Rare Disease Congressional Caucus; NIH researchers; and leaders of patient organizations. Topics will include gene therapy, gene editing, and engaging the next generation of the rare diseases community. For information or to register, visit the NIH web page .

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