The Rosacea Patient Journey: A Novel Approach to Conceptualizing Patient Experiences
The motivation for rosacea patients to seek and adhere to treatment is not well characterized. A patient journey is a map of the steps a patient takes as he/she progresses through different segments of the disease from diagnosis to management, including all the influences that can push him/her toward or away from certain decisions. We sought to examine each step of the rosacea patient journey to better understand key patient care boundaries faced by rosacea patients. A PubMed search of articles indexed for MEDLINE as well as a search of the National Rosacea Society Web site (https://www.rosacea.org) were conducted to identify articles and materials that quantitatively or qualitatively described rosacea patient experiences. Current literature pertaining to the rosacea patient journey was summarized. The rosacea patient journey is discussed. It is a useful tool to gain insight on patient experiences. Better understanding of the patient perspective by dermatologists can lead to better patient adherence to treatment and thus improved quality of life and satisfaction.
Practice Points
- For patients who are emotionally distressed by their rosacea and who lack a social support network, several rosacea-focused online support systems are available.
- An early follow-up visit to evaluate newly prescribed treatments can positively influence disease management.
Conclusion
Patients may be relieved that rosacea is not a life-threatening condition, but they may be disappointed that there is no cure for rosacea. As the patient and dermatologist work together to find an appropriate treatment plan, identify certain triggers, and modify the skin care routine, the patient can become disciplined in controlling rosacea symptoms. Ultimately, with the alleviation of visible symptoms, the patient’s quality of life also can improve. Better understanding of the rosacea patient perspective can lead to a more efficient health care system, improved patient care, and better patient satisfaction.
