News from NORD

NORD Welcomes Five New Member Organizations


As the leading advocacy organization for the 30 million Americans with rare diseases, NORD works closely with its more than 260 member organizations representing specific rare disease communities. The NORD board has approved five additional organizations for NORD membership.

They are the Advocacy & Awareness for Immune Disorders Association; Amniotic Fluid Embolism (AFE) Foundation; Atypical HUS Foundation; HCU (Homocystinuria) Network America; and Lung Transplant Foundation.

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