Spinal CSF Leak Foundation Publishes Resources for Medical Professionals and PatientsJanuary 9, 2017Rare Diseases
NORD Report Shows Majority of States Fall Short on Reducing Burden of Living With a Rare DiseaseJanuary 9, 2017Rare Diseases
PSC Partners Seeking a Cure Launches Campaign to Distinguish Between PSC and PBCDecember 6, 2016Rare Diseases
New Guidelines Published for Diagnosis and Management of Cystathionine Beta-Synthase DeficiencyDecember 5, 2016Rare Diseases
NORD Encourages Observing Rare Disease Day in Hospitals and Academic Centers December 1, 2016Rare Diseases
