As awareness about celiac disease continues to grow, experts agree that the current average 11-year gap between symptom onset and diagnosis will shrink, resulting in more diagnoses in childhood and adolescence.
There was also a consensus among all the experts interviewed that, given the recent findings of an increased mortality rate associated with this earlier diagnosis, any attempts to reduce this higher mortality must begin with a better understanding of the unique burdens that childhood diagnosis and treatment may bring.
Get Help With Celiac Disease
Dr. Edwards George recommends these organizations as good resources for patients and families dealing with celiac disease:
PICeliac Disease Foundation
PICeliac Sprue Association of the United States of America
PIGluten Intolerance Group
PINational Foundation for Celiac Awareness