According to results from a study published April 24 online in the Journal for Healthcare Quality, the American College of Surgeons National Surgical Quality Improvement Program (ACS NSQIP®) is one of few exemplary clinical data registries currently in use.
The researchers evaluated 153 registries that contained health service and disease outcomes data and found most of the others failed to measure and track outcomes in a meaningful way (http://goo.gl/fOV4Ju).
Data from the ACS NSQIP registry have generated valuable insights about surgical infections, transformed practice, and improved patient outcomes, according to Martin A. Makary, MD, MPH, FACS, senior study investigator and professor of surgery at Johns Hopkins, Baltimore.
Study authors said the hallmarks of a good registry include data that account for differences in patient case complexity across hospitals, broad hospital participation, meaningful measurement of complications, independent data collection, and open access to hospital performance for taxpayer-funded registries.
Investigators found that most other registries studied offered poor data monitoring and reporting, which the investigators said detracts from national efforts to study disease, guide patient choice of optimal treatments, formulate health policies, and track physician and hospital performance.
Dr. Makary noted most registries were underdeveloped, underfunded, and often not based on sound scientific methodology.
According to Heather Lyu, MD, lead author of the study and a research fellow at Johns Hopkins, exemplary registries illustrate the power to improve outcomes and inform best practices.