Clinical Edge

Summaries of Must-Read Clinical Literature, Guidelines, and FDA Actions

Persons with MS and Anonymity on Social Media

Mult Scler Relat Disord; ePub 2018 Sep 19; Eijkholt

Anonymity may not improve happiness of individuals with multiple sclerosis (MS), according to a recent study. Therefore, professionals who work with people with MS need to address structural barriers to enable in-person interactions. Researchers analyzed the relationship between honesty, authenticity, anonymity, and happiness in individuals diagnosed with MS, who reported using online social networks. They merged answers of 440 individuals from the Davidson Social Participation Survey with the NARCOMS Enrollment and Update Surveys. Descriptive analysis, T-tests, Pearson correlations, and OLS multivariate regression analysis were conducted. They found:

  • Individuals reported they could be more honest in face-to face interactions than with online contacts, regardless of whether they were anonymous or identifiable.
  • Happiness was associated with higher levels of honesty in in-person interactions.
  • A negative association was found between happiness and honesty for anonymous participants online, and no association between happiness and honesty when using real names.
  • Consistent results emerged for individuals using patient-specific and generic platforms.


Eijkholt. Health, honesty and happiness: Authenticity and anonymity in social media participation of individuals with multiple sclerosis. [Published online ahead of print September 19, 2018]. Mult Scler Relat Disord. doi:10.1016/j.msard.2018.09.020.

This Week's Must Reads

Recurrent Stroke Risk Higher for Blacks than Whites, Neurology; ePub 2018 Oct 3; Albright, Huang, et al

Sleep Duration/Stroke Link Differs by Race and Sex, Neurology; ePub 2018 Oct 3; Petrov, Howard, et al

Intracerebral Hemorrhage Survivors’ Outcomes Studied, J Stroke Cerebrovasc Dis; ePub 2018 Sep 28; Griauzde, et al

Probable OSA Common in Refractory Epilepsy, Epilepsia; ePub 2018 Sep 24; McCarter, et al

FDA Approves Tiglutik for Treatment of ALS, ITF Pharma news release; 2018 Sep 6

Must Reads in Multiple Sclerosis

Anxiety/Cognition Association in Multiple Sclerosis, Int J MS Care; ePub 2018 Sep 27; Vissicchio, et al

Persons with MS and Anonymity on Social Media, Mult Scler Relat Disord; ePub 2018 Sep 19; Eijkholt

Pregnancy Rates for Women with MS Increasing, Neurology; ePub 2018 Sep 28; Houtchens, et al

Nature of Instability in Persons with MS Examined, Arch Phys Med Rehab; 2018 Oct; Peebles, et al

Stressful Life Events and Multiple Sclerosis, Mult Scler Relat Disord; ePub 2018 Sep 22; Abdollahpour, et al