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Survey: Patient-Centered Decision-Making Preferred

Int J MS Care; ePub 2017 Jun 28; Cofield, et al

Nearly half (47.9%) of persons with multiple sclerosis (MS) who responded to a survey about treatment decisions most commonly preferred patient-centered decision-making, followed by shared decision-making (SDM, 42.8%). Disease-modifying therapy (DMT) use, gender, and age were associated with their decision-making preference. NARCOMS Registry participants completed the Fall 2014 Update survey, which included the Control Preferences Scale (CPS). Researchers also found:

  • Of 7,009 participants, 79.3% were female, 93.5% were white, and mean age (SD) was 57.6 (10.3) years; 56.7% reported a history of relapses.
  • SDM preference was higher for females and those taking DMTs and increased with age and disease duration.
  • Patient-centered decisions were most common for respondents not taking a DMT at the time of the survey and were preferred by those who had no DMT history compared with those who had previously taken a DMT.
  • There was no difference in SDM preference by current MS disease course after adjusting for other disease-related factors.


Cofield SS, Thomas N, Tyry T, Fox RJ, Salter A. Shared decision-making and autonomy among US participants with multiple sclerosis in the NARCOMS Registry. [Published online ahead of print June 28, 2017]. Int J MS Care. doi:10.7224/1537-2073.2016-091.