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Researchers Mine Free-Text Diary Entries for Seizure Cluster Insights

Key clinical point: Free-text diary entries by patients with epilepsy are a potential source of information about the frequency and treatment of seizure clusters.

Major finding: About 19% of confirmed seizure clusters may be found only through free-text notes and not through structured data elements such as seizure cluster check-boxes or seizure counts. About 30% of users took extra medicine for seizure clusters on 3,818 days.

Study details: An analysis of 5,955 EpiDiary entries by 1,839 users.

Disclosures: UCB Pharma and Irody, the company that owns EpiDiary, funded the study. Irody’s founder and president was a coauthor, and another author holds stock or options in Irody. A third author consults for Irody, UCB, and other pharmaceutical companies.


Fisher RS et al. AES 2019. Abstract 1.424.