Clinical Edge

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Fear drives activity changes in hemophilia patients

Key clinical point: Hemophilia patients were sometimes more likely to adjust physical activities based on fear of experiencing an event, as opposed to previously experiencing that event.

Major finding: More patients adjusted their activities because of fear of joint damage (44%) than past significant joint damage (36%), and more patients adjusted activities because of fear of breakthrough bleeds (41%) than past experience with bleeds (36%).

Study details: A survey of 194 patients with moderate or severe hemophilia A and 81 caregivers

Disclosures: The HemACTIVE study was supported by Bayer. Mr. Skinner disclosed relationships with Bayer and a variety of other pharmaceutical companies.


Skinner M et al. EAHAD 2020, Abstract P304.