Clinical Edge

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Fragmentation of sickle cell disease care starts in young adulthood

Key clinical point: Children with sickle cell disease mostly receive inpatient care at a single center, while care starts to become fragmented in young adulthood, with some patients being admitted to five or more centers over a 7-year period.

Major finding: The proportion SCD patients receiving inpatient care at a single facility was 60% for children, but just 20% for young adults.

Study details: Retrospective study including nearly 7,000 SCD patients seen in California during 1991-2016.

Disclosures: Dr. Mahajan reported no disclosures. Coauthors provided disclosures related to Pfizer and Janssen.


Shatola A et al. ASH 2019. Abstract 4667.