Most patients diagnosed with celiac disease (CD) learn self-management skills in progression, with most learning skills relevant to home, then social settings, then the workplace, and finally, unfamiliar settings. Patients attending a celiac center were invited to complete an anonymous survey which reported demographic information and time for mastery of self-management skills relevant to CD. Among the findings:
- 137 patients (79% female) returned completed surveys.
- Most participants reported mastering skills that involved identifying gluten-containing vs gluten-free foods within 6 months.
- Explaining CD and gluten-free diet (GFD) to others required 1-2 years, while identifying gluten in medications and supplements required 3-5 years.
- GFD adherence while traveling internationally required >5 years to learn.
- Demographic factors were not associated with rate of acquisition.
Clerx EM, Silvester J, Leffler D, DeGroote M, Fishman LN. Sequence of acquisition of self-management skills to follow a gluten-free diet by adults with celiac disease. [Published online ahead of print February 26, 2019]. Dig Liver Dis. doi:10.1016/j.did.2019.02.008.