Key clinical point: Patients with celiac disease often do not receive a confirmatory duodenal biopsy or nutritional recommendations at diagnosis.
Major finding: In all, 21% of patients said they never had a confirmatory biopsy. Nonbiopsied patients were significantly less likely to have been diagnosed by a gastroenterologist (adjusted odds ratio, 0.16) or to have sought nutritional counseling (aOR, 0.45) and were significantly more likely to use digestive supplements (aOR, 2.61).
Study details: Online survey of 982 adults with self-reported celiac disease.
Disclosures: The iCureCeliac Patient Powered Research Network is supported by the Patient-Centered Outcomes Research Institute. The investigators reported having no relevant conflicts of interest.
Joelson AM et al. Clin Gastroenterol Hepatol. 2018 Sep 10..