Patients with psoriasis and psoriatic arthritis often have unmet expectations about treatment while contending with disruption in their daily functioning, roles, and life course, according to a new study. Researchers sought to describe the range and depth of perspectives and experiences in this population to inform gaps in patient-centered care. Thematic synthesis was used to analyze the findings. Among the details:
- The systematic review included 56 studies involving 1,484 patients with psoriasis (n=1,147) and psoriatic arthritis (n=337).
- 6 themes were identified: suffering uncontrollable and ongoing upheaval; weighted down by mental load; harboring shame and judgement; demoralized by inadequacies and burden of therapy; gaining control; and making confident treatment decisions.
- Addressing these concerns may improve satisfaction and outcomes.
Sumpton D, Kelly A, Tunnicliffe DJ, et al. Patients’ perspectives and experience of psoriasis and psoriatic arthritis: A systematic review and thematic synthesis of qualitative studies. [Published online ahead of print March 30, 2019]. Arthritis Care Res (Hoboken). doi:10.1002/acr.23896.