Clinical Edge

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Patient Perspectives and Experience of Psoriasis

Patients with psoriasis and psoriatic arthritis often have unmet expectations about treatment while contending with disruption in their daily functioning, roles, and life course, according to a new study. Researchers sought to describe the range and depth of perspectives and experiences in this population to inform gaps in patient-centered care. Thematic synthesis was used to analyze the findings. Among the details:

  • The systematic review included 56 studies involving 1,484 patients with psoriasis (n=1,147) and psoriatic arthritis (n=337).
  • 6 themes were identified: suffering uncontrollable and ongoing upheaval; weighted down by mental load; harboring shame and judgement; demoralized by inadequacies and burden of therapy; gaining control; and making confident treatment decisions.
  • Addressing these concerns may improve satisfaction and outcomes.

Citation:

Sumpton D, Kelly A, Tunnicliffe DJ, et al. Patients’ perspectives and experience of psoriasis and psoriatic arthritis: A systematic review and thematic synthesis of qualitative studies. [Published online ahead of print March 30, 2019]. Arthritis Care Res (Hoboken). doi:10.1002/acr.23896.