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Quality of Life in Parents of Children with Alopecia

J Am Acad Dermatol; ePub 2019 Jan 9; Putterman, et al

Impaired parental quality of life (QOL) may be associated with increasing severity of alopecia areata and age of affected child but not duration of disease, a recent study found. Therefore, providers should tailor counseling accordingly and help parents set realistic expectations for long-term experience with the disease. Pediatric patient (n=153) and their parents were invited to participate during clinic visits. Participating parents completed the Quality of Life in a Child’s Chronic Disease Questionnaire (QLCCDQ) and the Family Dermatology Life Quality Index (FDLQI). A subset of children completed the Children’s Dermatologic Life Quality Index (CDLQI). Severity of alopecia tool (SALT) scores at time of survey completion were recorded. Researchers found:

  • Significant mild to moderate negative correlations were found between SALT scores and FDLQI scores, QLCCDQ scores, and QLCCDQ emotional domain scores.
  • Age of child correlated negatively with QLCCDQ scores but not FDLQI scores.
  • No significant correlation was found between duration of disease and FDLQI scores, QLCCDQ scores, or QLCCDQ emotional domain scores
Citation:

Putterman E, Patel DP, Andrade G, et al. Severity of disease and quality of life in parents of children with alopecia areata, totalis, and universalis: A prospective, cross-sectional study. [Published online ahead of print January 9, 2019]. J Am Acad Dermatol. doi:10.1016/j.jaad.2018.12.051.