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Quality of Life in Parents of Children with Alopecia

J Am Acad Dermatol; ePub 2019 Jan 9; Putterman, et al

Impaired parental quality of life (QOL) may be associated with increasing severity of alopecia areata and age of affected child but not duration of disease, a recent study found. Therefore, providers should tailor counseling accordingly and help parents set realistic expectations for long-term experience with the disease. Pediatric patient (n=153) and their parents were invited to participate during clinic visits. Participating parents completed the Quality of Life in a Child’s Chronic Disease Questionnaire (QLCCDQ) and the Family Dermatology Life Quality Index (FDLQI). A subset of children completed the Children’s Dermatologic Life Quality Index (CDLQI). Severity of alopecia tool (SALT) scores at time of survey completion were recorded. Researchers found:

  • Significant mild to moderate negative correlations were found between SALT scores and FDLQI scores, QLCCDQ scores, and QLCCDQ emotional domain scores.
  • Age of child correlated negatively with QLCCDQ scores but not FDLQI scores.
  • No significant correlation was found between duration of disease and FDLQI scores, QLCCDQ scores, or QLCCDQ emotional domain scores

Putterman E, Patel DP, Andrade G, et al. Severity of disease and quality of life in parents of children with alopecia areata, totalis, and universalis: A prospective, cross-sectional study. [Published online ahead of print January 9, 2019]. J Am Acad Dermatol. doi:10.1016/j.jaad.2018.12.051.