Clinical Edge

Summaries of Must-Read Clinical Literature, Guidelines, and FDA Actions

Restless Legs Syndrome Burdens Patients, Partners

Sleep Med; 2018 Jul; Ondo

Despite treatment, restless legs syndrome (RLS) continues to impact both subjects and their partners, according to a recent study. Therefore, impact on the partner/family should also be considered in clinical decision-making. In this study, the Patient Odyssey survey was commissioned by the Restless Legs Syndrome Foundation and designed to assess the day-to-day impact of RLS on patients and their spouses/partners. Researchers found:

  • Surveys were completed by 1,622 adult patients (70% female), and 676 adult spouses/partners (65% men and 35% women), either online or by mail.
  • RLS markedly impacted patient sleep as well as mitigated travel, work, and mood.
  • Patients reported significant problems with social aspects, sleep problems, and perceived lack of effective treatments and concern for their problems.
  • Partners also reported impact on their sleep, leisure time, and their relationship with the patient with RLS.

Citation:

Ondo W. Restless legs syndrome “Patient Odyssey” survey of disease burden on patient and spouses/partners. Sleep Med. 2018;47:51-53. doi:10.1016/j.sleep.2017.12.003.

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